The editors’ proposal sounded intriguing: a monthly column about people beset by baffling illnesses that were ultimately identified — a fraught, often frightening and sometimes life-altering quest that could take years.
At the time — 2007 — reality TV shows featuring patients with unexplained conditions that stumped doctors were popular. So was the weekly drama “House,” about a savant physician who heads a hospital team that cracks tough cases.
As a Washington Post writer specializing in clinical medicine, I was fascinated by the complexities surrounding medical errors, which are believed to be the third leading cause of death in the U.S. The challenging nature of diagnosis sparked my interest, particularly since it could involve cognitive pitfalls and communication barriers between doctors and patients.
My editors and I decided to experiment with a column called “Medical Mysteries.” Eighteen years later, this initiative remains popular, attracting an engaged readership.
Many doctors use these cases for teaching medical students; some stories have even been featured on shows like “Grey’s Anatomy.”
Remarkably, the column has helped solve long-standing mysteries, revealing conditions like painful tumors linked to rare cancers.
Common complaints varied from head lice misdiagnosed for a year to a woman at the NIH whose ALS, later found to be a reversible vitamin deficiency.
This column’s journey terminates for me as I retire, although it will continue under new authorship. My gratitude extends to all who opened their stories to me.
Tips for Patients Seeking Medical Clarity
1. Find a Good Primary Care Physician (PCP)
Having a reliable PCP helps manage healthcare better by coordinating referrals and preventing unnecessary consults with various specialists.
2. Ask Questions
Don’t hesitate to inquire what else your symptoms could signify, particularly if progress seems stagnant. This open dialogue may uncover hidden diagnoses.
3. Access Your Medical Records
Reviewing your medical history can provide vital insights and guide future treatment.
4. Research Responsibly
Use credible sources and studies to verify any health information consumed online.
5. Seek Second Opinions
For any serious matter, consulting another expert can reveal different perspectives and possibly new solutions.
In conclusion, self-advocacy and informed dialogue are integral in navigating the maze of healthcare efficiently.
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